Monday, December 15, 2014

William's appointment itinerary

Tuesday, December 16
Nerve Conduction Velocities (NCVs) 9:30am

Wednesday, December 17
Clinic appointment at NDRD (Neurodevelopment in Rare Disorders)
We will meet Dr. Escolar and the NDRD team.  7:30am

Brain and Lumbar Spine MRI/Lumbar Puncture 2:00pm

Thursday, December 18
Visual Evoked Potentials (VEPs) 10:45am

Auditory Brainstem Response Evaluations (ABRs) 1:00pm

if after all of that Dr. Escolar determines William is a transplant candidate...

Friday, December 19
BMT appointment (Bone Marrow Transplant) 12:30pm

Click on the following website to learn more about Krabbe and Dr. Escolar's research and program.
http://www.chp.edu/CHP/krabbe+rare+disease

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