Tuesday, December 16
Nerve Conduction Velocities (NCVs) 9:30am
Wednesday, December 17
Clinic appointment at NDRD (Neurodevelopment in Rare Disorders)
We will meet Dr. Escolar and the NDRD team. 7:30am
Brain and Lumbar Spine MRI/Lumbar Puncture 2:00pm
Thursday, December 18
Visual Evoked Potentials (VEPs) 10:45am
Auditory Brainstem Response Evaluations (ABRs) 1:00pm
if after all of that Dr. Escolar determines William is a transplant candidate...
Friday, December 19
BMT appointment (Bone Marrow Transplant) 12:30pm
Click on the following website to learn more about Krabbe and Dr. Escolar's research and program.