William is at risk for developing graft-versus-host-disease at any point 100 days post transplant. He is showing no signs of such, up to this point, but they will keep us here for that duration regardless.
More information on graft-versus-host disease:
We are currently post transplant day 66.
As we delicately reduce William's medications, he is becoming more alert and attentive to his surroundings. We are uncertain what he will and will not be able to do at this point, but we are optimistic that he will be able to communicate through assistive technology, the type to be determined once we establish William's baseline.
William's doctors stated that we won't be able to see William's true potential (baseline) until 1 year post transplant.
We have follow up appointments 3 days this week. We were currently on a 2 day a week schedule, but his doctors want to more closely monitor his platelet levels to see if the level will stay consistent without the need for a transfusion. In the recent past, he was transfused regardless so he would for sure be OK over the weekend.
My family and friends are working incredibly diligently on William's fundraiser in Burlington, Iowa, on April, 11, 2015. There are a lot of items up for grab and fun events, check it out on the facebook page at: