William is getting discharged today! We are BEYOND excited! He hasn't left his hospital room since January 2. Robert and I are celebrating by getting a bite to eat before our little boy joins us at the Ronald McDonald House. Papa Ron and Gogo Marcia will be here a few more days and my brother Adam will be here this weekend.
Robert and I are familiar with g-tube care and feedings. We also received training yesterday on central line usage and care; William will have his g-tube indefinitely, and he will keep his central lines until we are dismissed back home. As outpatient, William will receive transfusions through his central lines and they can also draw blood through the lines.
Thank you for all of your thoughts and prayers for our little miracle. I will post a picture or two of the "parade" the nurses and doctors are going to have for William when we are leaving. 😊
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