Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease.
Thursday, May 7, 2015
William's infection panel came back negative. They tested him for the
most common. Since there are thousands of infections and viruses, it is
assumed he had something and fought it off on his own. With his
central lines, they are overprotective and act aggressively when a fever
arises. William's numbers are considered normal again, although with
an infection and/or virus, for any of us, there are some residual
affects on white blood cell counts, hemoglobin and platelets. His
numbers are all OK, except for one: his hemoglobin. It is borderline,
so to keep it from dropping anymore before it rises again, he will be
getting a blood transfusion in a few minutes. He hasn't had any
transfusions in over a month. In layman terms, this is a way to "top
him off" before we head home. Once his central lines are removed, this
type of low grade fever will not require hospitalization. Tentative
date for line removal is May 15 after his last IVIG treatment.
We are all well. We have one more night in the hospital to cover the "48 hour" window to see if any other issues surface.
I want to go home! So ready.