Join us on our journey as our son, William, battles a devastating terminal illness called Krabbe Disease.
Monday, November 16, 2015
how to DEMAND Krabbe be added to your states newborn screen
Want Krabbe added to your state's newborn screen? Let your state representatives know by following this link. It will take you 5 minutes tops. https://secure3.convio.net/hhf/site/Advocacy?cmd=display&page=UserAction&id=111