Family and friends,
Today was William's last day of chemo. He is holding steadfast and resting well. His pain management team is constructive and adaptable. The toughest part is from today through the next 2 to 3 weeks as it takes time for the transplant (donor cells) to graft. His overall appearance is OK; he is somewhat pale but doesn't have any negative aggressive side effects at this time. The chemo has done its job effectively and his white blood cell count is now at 0. Tomorrow he will "rest" from chemo and the transplant will be on Thursday. Because the chemo is secreted through the skin, we are unable to touch him without the aid of surgical gloves, but that protocol will only be necessary for 24 hours from the time the chemo ended. PapaRon and Gogo Marcia are imperative for William's well being and also my own; Papa Ron has stayed with William the past 5 nights. Robert will be back in Pittsburgh tomorrow (he travels back and forth from Salt Lake City for work) and will be here for transplant day. Thank you for your support and prayers. We have a good support team here that are readily available for any needs we may have (although a cure for Krabbe Disease would be super great about now).
Love, Robert, Abbey and Baby William